A nine-year-old girl from Tamworth, who has bravely battled cancer, has become Birmingham Children’s Hospital’s first recruit to a ground-breaking study that is aiming to revolutionise healthcare.
Amy Barrett, a pupil at The Landau Forte Academy, has been cared for by experts at the hospital since she was diagnosed with spinal cancer in June 2016 and became the first participant to be recruited by the Trust for the oncology arm of the pioneering national 100,000 Genomes Project earlier this month.
After undergoing extensive treatment including many rounds of chemotherapy and proton beam therapy, Amy and her family received the news they’d been waiting for this summer – when she was given the all clear and rang the special ‘end of treatment’ bell.
She now continues to visit the hospital, which will open its doors to a new multi-million pound world-class Cancer Centre in January 2018, for regular check-ups.
The family were keen to take part in the project, which is aiming to improve the treatment in both cancer and rare diseases by getting a better understanding of Genome sequencing in the body, to help others who find themselves in a similar situation in the future.
Dad, Dean Barrett, aged 47, said:
“We’re so thankful to the teams Birmingham Children’s Hospital for everything they’ve done for Amy and our family.
“We were really keen to give back in any way we could, so we’re delighted that she’s been able to get involved in the 100,000 Genomes Project. We all really hope that it will help in some way to develop and improve treatments for others in the future.”
Since the launch of the study, the expert hospital has been a passionate supporter recruiting almost 2,500 patients and families to the rare diseases aspect of the project.
The specialist hospital is one of 18 Trusts that together form the West Midlands Genomic Medicine Centre (WMGMC).