Join the Participant Panel
Genomics England has an active Participant Panel who’s mission is to help ensure that the interests of participants remain at the centre of the 100,000 Genomes Project. The panel acts as an advisory committee to the Genomics England Board and several members have been invited to sit on other committees within Genomics England, for example the Access Review Committee, the Ethics Advisory Committee etc.
We are currently looking for participants from the West Midlands region to join the panel to help shape the future of the 100,000 Genomes Project. They will do this by:
- Making sure that the experiences of participants are improved.
- Responding to feedback.
- Overseeing who should have access to participant data.
Who can be a member of the panel?
Anyone who has taken part in the 100,000 Genomes Project can be on the panel. Carers of people who have taken part are also welcome. We would like participants from both the cancer and rare disease parts of the Project.
Members should be able to put themselves into other people’s shoes, and see the point of view of other participants as well as using their own experiences.
What will it involve?
The panel will meet twice a year in London. This is likely to be a ½ day meeting. Those who are unable to join meetings in person can join by telephone or Skype. There are likely to be documents to read or consider before any meetings. There may also be follow up work. Documents and paperwork will usually be sent by email.
We hope the panel will shape their own work and define their own responsibilities. All members will be expected to contribute their ideas and experiences to the panel.
Some panel members will also sit on other committees in Genomics England. These include:
- Access Review Committee, who oversee who has access to the participant data.
- The GeCIP Board, who oversee research in the 100,000 Genomes Project.
Panel members who also sit on these committees will need to attend extra meetings.
Why take part?
The Project is the largest national sequencing project of its kind in the world. It is at the cutting edge of science. This is an opportunity for participants in the 100,000 Genomes Project to shape its future.
The panel will play an vital role in our groundbreaking work. Panel members will help guide this pioneering project and how genomic medicine is used in the NHS in the future.
We want to make sure that ensure the interests of participants are always at the centre of the 100,000 Genomes Project.
Are expenses paid?
Panel members will be paid for their time and reasonable expenses will be covered. We will provide support and training for everyone on the panel.
How to apply
Please download the role description for more information.
Please email email@example.com if you are interested in joining the Panel. In your email, please outline why you are interested in this role. Please also include how you are involved in the 100,000 Genomes Project. Finally, please include your name and contact details.
You can contact us on firstname.lastname@example.org if you have any questions.