Module leads: Ms Kathryn MacKay and Prof Heather Draper
Module code: 01 27585
Attendance: Teaching delivered on Thursdays for five consecutive weeks
Module dates: 10 May – 7 June 2018
Learning hours: 150 hours – teaching and private study
Many genomic tests have wider implications for the patient and their family, particularly where these may have a predictive aspect, provide incidental information, have potential for being misleading or increase uncertainty. The student will explore the ethical, legal and social issues (ELSI) involved in genomic testing and in specific integrated pathways.
By the end of the module students should be able to:
- Explain and defend the ethical principles of confidentiality, autonomy, disclosure, informed consent and natural justice to scenarios within genomic medicine in a global context
- Critically evaluate the challenges of emerging genomic technologies on society and societal values
- Critically appraise the current legal framework within which genomic medicine in practised in the UK, Europe, USA and globally
- Identify and critically evaluate the ethical, legal and social impact of genomic medical advances in a clinical pathway
- Critically evaluate and defend the principles of the Helsinki Declaration under which all medical research is performed with specific reference to genetic research
- Critically appraise the global impact of genetic databases on human autonomy, healthcare provision and discrimination
- Identify those clinical pathways in their own specialty or field of practice where the use of genomic investigation/techniques may be beneficial to patients, and be able to argue for those benefits
Assessment: The module will be assessed via a 3000-word essay and an exam made up of short answer and extended matching set questions (essay submission date and exam, typically around five-six weeks after the teaching).