Rare disease and cancer patients being recruited across the region

The West Midlands Genomic Medicine Centre recruited thousands of patients with some common cancers to take part in the 100,000 Genomes Project via participating NHS Trusts across the region. Patients with certain inherited rare diseases and their families also took part in the project until recruitment ended in 2018. Taking part did not, and will not, affect routine NHS care.

Eligible patients were invited to take part by their hospital doctor or healthcare professional. In the case of rare disease patients, close family members were also invited to participate.

In each case the clinician, or a recruiting nurse, carefully explained the Project to participants, how information would be used and what feedback could be expected. Patients and family members were then asked to formally consent to taking part.