Rare disease and cancer patients being recruited across the region

The West Midlands Genomic Medicine Centre is currently recruiting patients with some common cancers to take part in the 100,000 Genomes Project via participating NHS Trusts across the region. Patients with certain inherited rare diseases and their families have also taken part in the project until rare disease recruitment ended in September 2018. Taking part does not affect routine NHS care.

Eligible patients will be invited to take part by their hospital doctor or healthcare professional. If you feel you may be eligible and are interested in taking part please discuss the matter with your clinician in the first instance. If they think you may be suitable they will refer you to one of the Trusts within our GMC.

In the case of rare disease patients, close family members will also be invited to participate.

In each case the clinician, or a recruiting nurse, will carefully explain the Project to you, how your information will be used and what feedback you can expect. They will then ask you to consent formally to take part.