How can patients, family members and the public get further involved?
There are a number of opportunities for patients and the public to get involved with the West Midlands Genomic Medicine Centre. These include:
- Joining our Patient and Public Involvement panel, which will directly shape the future of the Genomic Medicine Service. Applications are welcome from anyone interested in genomics, participants from the 100,000 Genomes Project and family members/carers of participants.
- Signing up to our mailing list for regular updates.
Join the WMGMC Patient and Public Involvement Panel
The West Midlands Genomic Medicine Centre launched a Patient and Public Involvement Panel to help influence and shape the future of the 100,000 Genomes Project in the West Midlands.
The panel advised on issues like the communication of project updates, and management of results. Some members also sat in on other WMGMC meetings, like the monthly Operations and Management meetings.
The members of the panel ensured that there was always a patient and public perspective in the WMGMC.
As we approach the launch of the Genomics Medicine Service, the role of the panel will be important in influencing all aspects of this exciting new service. Through the service patient’s with some forms of cancer and certain rare and inherited diseases will be offered genomic tests which may lead to personalised treatments and diagnoses for some.
Who can be a member of the panel?
Participants of the 100,000 Genomes Project can be on the panel. Parents, carers and family members of people who have taken part are also welcome. We would also welcome applications from anyone with an interest in genomics.
We would like a diverse panel, from across our 16 Trusts across the West Midlands.
People from all backgrounds and all abilities are welcome.
What will it involve?
The panel will meet several times a year. The meeting’s location will vary, depending on where members of the panel live, to ensure all have a chance to attend in person.
Those who are unable to join meetings in person can join by telephone or video conferencing. There are likely to be documents to read or consider before any meetings. There may also be follow up work.
Documents and paperwork will usually be sent by email, though post can be arranged.
We hope the panel will shape their own work and define their own responsibilities. All members will be expected to contribute their ideas and experiences to the panel.
Why take part?
The project was the largest national sequencing project of its kind in the world. It is at the cutting edge of science. Joining the panel is an opportunity for participants and members of the public to shape the future of genomic medicine here in the West Midlands as we transition into a Genomics Medicine Service.
Panel members will help develop how genomic medicine is used in the NHS.
Are expenses paid?
Yes. Travel expenses will be covered, with food and drink provided at the meetings. We will provide support and training for everyone on the panel.
How to apply
If you would like to apply, please complete this application form.
We have a role description, providing further information here.
Please contact Ray Rayhan (0121 371 8106) if you have any questions about the panel. Please include your name and contact details.